No more ventilator!

Yea! Grace is off of her ventilator. She has a little oxygen through her nose to help her out, but nothing in her mouth! I (topher) got to hold her! it was the first time after her second day that I got to hold her. She looked very cute, very awake and alert. I also got to try and give her her pacifyer. After having a breathing tube down her throat for most of her life, it was a little wierd for her to try and suck on something, but she did really well. Hopefully this will mean that she will start to feed on milk in the next few days.


princess jen said...

She's SO BEAUTIFUL!! Can I come visit soon? I'm so happy you finally got to hold her. I love you!

AJ Finnegan said...

Oh my goodness! Sweet little thing!! (I'm talking about Grace, Toph, not you!) Though I am proud of you and Alysia as well, believe me :)

I'm so happy Grace is off her ventilator. What a huge step!! She looks so different now! Looks like they're feeding her meat in those IVs!

She looks to be growing well, and what sweet, pretty eyes she has. I bet you wanted to hold her forever and ever.

Thanks so much for sharing the good news and pics!

We love you all!

Sara & Company said...

She really is absolutely adorable and I'm so excited everything is going as well as it could for her. I'm so happy you get to hold her again and that the surgeries were successful. Hope you feel better, buggy! Love you all!

BUG said...

Good Morning KID!!!
She is beauitful and we love here name. The three of you make a forever family. Our prayers are with you. If you need anything you call you know my number. Love you Scott & Annette

crowfamily said...

Yea! What an exciting step! She is gorgeous!

BUG said...

Kid, both Annette and I wanted to leave you a quick note to let you know that we are both so happy that Grace is doing better.

Everyone is right! She is such a cutie and she appears to be doing so well. We spoke to your Dad yesterday and he is hopeful for little Grace as are we. You and your family are in our prayers and we will check back frequently to see how all is going. We love you guys and hope to talk to you soon.

Mythreesons said...

Yay, yay, yay! I'm so excited she's off the vent and love the pics with her eyes open! I"m so glad she's doing as well as she can and am still praying daily for you guys. I hope you're feeling better soon, Bugs. I'm so sorry you're sick. Keep me posted on what you hear today and know that I love you guys!

Super Daysh said...

Yay!!! No more ventilator!! That is such great news! You can see her whole face now!! She is so cute!! Go Gracey, our little fighter! I'm glad you got to hold her Topher, it looks like you have the magic touch. ;) Hopefully Bug will get over her bug...we love you little Bug. Get better!

carolyn q said...

That is such exciting news to share!
She is very beautiful and looking so alert.
Oh, enjoy those moments of finally getting to snuggle her.
Carolyn Quigley
President, Intermountain Healing Hearts

kristen said...

What exciting news! We are very grateful that Grace is such a strong girl. I can't believe all she has been through in her little life already. She is an example to us all. As you and Alysia are as well. She is SO beautiful by the way. Thank you for sharing all the pictures of her with us. She is a gorgeous baby!
All our love and prayers,
the Cali Atkinson's

Tanner, Avery, and Benson Milne said...

Your sister left a comment on my blog a few days ago and I was so excited to find your blog! Both our girls had the same procedure done. I believe the hybrid saved our Bela's life so far and will give her a much better chance at getting through the norwood. Your Grace will recover from her surgery so fast and before you know it you'll have her home with you. When Bela was extubated it was so good to actually see her whole face for the first time.. I'm so happy that Grace got that tube out, that's a good moment. I'll keep following her journey. I know I'm only a few steps ahead of you, but if you think I could help in any way or answer any questions please let me know. We'll be praying for you all.

Simmons Family: said...

I just linked over to your blog from another HLHS blog and I love Gracie's story! She is so adorable and such a little fighter! You've been faced with some tough decisions thus far. I will say prayers for your family and baby Gracie. Our little Owen (HLHS) is 2 mo. and went through the Norwood. Everyday is a blessing with our little heart babies. I will follow Gracie's journey and wish you happiness! Andrea

Andrew and Marti Enke said...

I am so excited that Grace is doing well! She is such a strong and beautiful girl! I hope to meet her soon!

The Curtis Family said...


I just wanted to introduce myself. I also belong to the IHH group and my son Ethan also has HLHS. He is now 11 months old and is currently doing well. I live close by in Woods Cross (although I grew up in Bountiful) and would be happy to offer any assistance that you may need. I am happy that Grace is doing well and hope that you are holding up well yourselves. Feel free to look at our blog and to ask any questions that you may have. We will be following your journey. Take care.

---Allison (ethanjamescurtis.blogspot.com)

GICK said...

We are so pleased that little Grace is off of her ventilator. She must be doing well indeed. She sure looks like she is growing in leaps and bounds, every time we see a new picture of her. Take care, we love you. Tolman's

AJ Finnegan said...

Grace is still first in our thoughts and prayers :)

You two are such an inspiration to me, handling a trial much bigger than I could've even imagined at your age. Let's see, in my first year of marriage (first 5 actually) I was still trying to figure out mac and cheese! And here you are gracefully navigating through, and saving your daughter's life, with technical jargon that I can't even pronounce.

Truly, Toph and Alysia, your strength and faith is an example to us all.

Love you!

Christi Ann said...

Hey miss leash. How are you feelin? Hopefully better!! I miss you guys and hope that gracie is still doing wonderfully. You guys are all amazing!!
Hope to hear from you soon!!
-Christi Ann Fork Klepto

sheree tanner said...

You are in my prayers!

Nancy Shaw said...

Thank you so much for posting this blog. I continue to pray for your sweet little family. I'm so glad that Grace is off the ventilator. She is such a strong little girl!
I know Heavenly Father answers each and every prayer. What a great comfort it is to know we are all in His loving care. Beside being very strong, she is so beautiful!
Love, Aunt Nancy (Boise)