Gracie's transplant is NOT going well.
with tears of joy running down my face, i am writing this quick blog.
So, I apologize for not letting everyone know about the rest of the test results...
but we did get the results back for Parvovirus (Fifth's Disease) and that also came back negative.
So, we know she had to have had some sort of virus...but it went away, and she is even healthier now than before.
She has been eating really well the past three days in a row!! Its been wonderful!! She has been eating record amounts (for her), and I couldn't be more thrilled.
So, just to let everyone know, she is healthy, happy and doing well.
Thanks for keeping us in your prayers. :)
Love the Andersens
We heard back on the results now of most of the tests. Grace does not have influenza or RSV, and there was no rejection to worry about with her heart. So so far everything has been really great news! Her heart is functioning well, and has no rejection issues. We haven't heard back about the fifths disease yet, but that is the only one that we are waiting for now.
This is going to be a really quick post.
Gracey has couple of issues to deal with at the moment. This is Emily, Buggy's sister posting. Bugs just called me and said that about 15 minutes after she was snuggling with Toph, they came to take her temperature and it was really high. Plus she's been throwing up, she's very irritable and her white cell count is down, which usually indicates a virus. They gave her some Ibuprofen to bring her fever down, but it's still going up. There's some worry that she may have been exposed to Fifth's Disease over the weekend and her symptoms seem to be in line with that, but again, that's just speculation at this point. We're confident that she'll be fine, but right now she's super grumpy and irritable and her fever really needs to come down so she just needs some prayers to help her calm down and maybe sleep and some prayers for her mommy and daddy that are worried like always. I'm sure Bugs will update again as soon as the fever starts coming down or we know what kind of a virus we're dealing with. Thanks everybody for the prayers and support!
Grace is out of her procedure. Everything went well and she is snuggling in her Daddy's arms.
It is Grace's biopsy this morning. We are now in the waiting room, just having left Grace about 30 minutes ago. She was pretty tired (like us) having had to wake up at 5:30 in the morning. She was also very calm and cuddly, but not so much that she couldn't coo at her Daddy for a good 30 minutes, and wave at the little baby behind us. She seemed a little unsure, but still OK when we gave her to the nurse to go into the cath lab....but they're are all so great, we know we have nothing to worry about, except someone stealing Grace's fancy over us ;).
Sometimes I am grumpy and stressed because I feel that my life is so far from ideal. I feel pessimistic and worn out with our situation, and especially disappointed for my daughter's life. I want her to be healthy, and normal like all the other babies in my family. I cry, and complain, and feel miserable far too often. Then, I read a few blogs belonging to other 'heart' babies, and immediately feel ashamed.
This seems to be a frequent thing with me, and I feel very embarassed to admit it. However, it is the truth, so what can you do?
Compared to so so so many other 'heart' babies, we have it easy. So, overwhelmingly easy.
Grace's life has not been like a normal, healthy baby's, HOWEVER, for a 'heart' baby, she has had a miraculously smooth ride. She never really looked sick, or 'blue'. She always ate relatively well, slept relatively well, never had to have sporadic runs to the hospital. Her need for Hospital care was definitely the bare minimum. Looking at so many other people's blogs though, I now realize just how blessed we were, and still are.
Heavenly Father must have known where my limits were, and he never pushed me past them.
Grace's Biopsy is tomorrow, and so yes, I would love if you could keep her in your prayers.
But, there are some people that need your prayers so much more than us.
Gracie Gledhill, another HLHS baby, has had a tough tough road. Any of you that have read her blog (it is listed to the right btw), know how hard their journey has been thus far, and yet, it is only getting harder. They have just been told that Gracie is no longer a candidate for the 3 stage surgeries, (she was to have her Glenn this weekend). She is now being considered for a Heart Transplant. How overwhelming this must be for their family. They are still in the midst of getting it cleared with their Insurance company and getting all of her tests done.
But please, please pray for them. Although a Transplant is the definition of 'bittersweet', it is the most amazing blessing and would be so wonderful for them. If anyone can deserve a heart transplant, it is this little girl.
Also, little Gracie Gourley is having a hard time as well, recovering from her procedure, and eating. Please pray for her.
Bela Benson is having the same issues as Grace with eating and also could use some extra prayers.
But, the more I think about people who need prayers and support, the more I am overwhelmed with just how many heart families that are out there, all in need of prayers and support.
Please for for these families that are all in their trying situations.
Thank you for the prayers that I know will be offered in our little Grace's behalf this weekend.
We feel confident that everything will go well. Grace has been such a fighter this far, we know she's not giving up any time soon. She will most likely do very well, and we won't even have to spend the night, the same can not be said for so many others.
We'll post to let everyone know how it went.
Thank you again
Writing a blog on a weekly basis......FAILED