Biopsy Results

Sorry for not having updated during the day...Topher was at school from 8 until 2:30, with his laptop...leaving me unable to blog.

And then, when he finally did arrive, the internet connection was HORRIBLE!  It was taking literally 5 minutes for 1 page to load, and then it would freeze up.

The connection seems to have regained some speed now...so I will proceed with the update!

After many late meds, wrong meds, late feeds, no feeds, foot pokes, IVs, mis-communications, frustrations and rude comments, (mostly on my part), we did finally get into the Cath Lab at 9:00 this morning...(Originally this was supposed to be at 7:30, then at 10:00, then at 7:30)...

I won't go into detail about all the above things...because it would take way too long, and it would fire me up and I'd say rude things and look like a bad person all over again. :)

So, as I was saying, she went in at 9:00.  My Mama-in-law was sweet enough to come be with me from 9 until 10:30, and that helped relieve a lot of my stress (Thank you for keeping me company Venice! You're wonderful!).

Grace got out from the lab at 11, happy, and hungry and trying desperately to sit up.  Because of where they went in in her groin, she was on "bed rest" and wasn't supposed to sit up or stand, and was supposed to keep her leg straight.  Hahaha!! I'd like to see anyone keep an 8month old's leg straight and still.

After I met up with her she proceeded to eat 95 cc of Pedialyte in 15 minutes, zonk out for an hour, wake up and eat 120cc of Formula, zonk out for 2 hours, wake up and eat 80cc, play for 30 minutes, zonk out and start all over again.

The steroids are definitely making her super hungry. And hey, if that's the only good thing that comes from this visit..I'll take it, no complaints!

Anyway..I'm drifting off topic...and I know I'm not making much sense and I'm kinda all over the place.  Sorry.

So, the pictures from her biopsy all looked good.  None indicated rejection.  Pulmonary arteries looked surprisingly beautiful, aortic arch looked really funny, but functioning great, SVC also looked good, blood pressures were good.  All her blood work came back looking good.  

Her biopsy snippets came back with an overall rejection level of 2.5 which is just mild rejection.  This is supposedly to be expected, and just fine.  

Because of the slight rejection we'll be increasing her steroids again.  But, instead of taking 2 1/2 months to wean her down, it will only take 2 weeks, so that is definitely good news.....and bad news.

Good news because she is healthy and well overall, and will be even better in only 2 weeks...bad news because we are starting all over again not only with severe immunosuppression, but with the severe house arrest....right before Thanksgiving. :(

But that's ok.  We are just grateful this is all there was to deal with.  We know it could have been so much worse, and we're grateful that it isn't.  We're grateful she is eating so well, sleeping well, and that she is as healthy and happy as she is.

So, it's been a long day, with not much new information, but I'm sure its good to know where we stand. :)

 Thank you so much to everyone for all your prayers.  We have definitely felt them throughout the day.   We are so grateful for wonderful and supportive family and friends. We have recieved so many calls of support and love and are so grateful for each and every one.  It is such a blessing to have such a wonderful support system.  Thank you thank you thank you!

We love you all so much!

Hope you all have a great weekend!

Love the Andersens