Just Getting Adjusted

Sorry for the delay! I realize that we've been home since Friday, and I have been a big slacker...but...surprisingly, I have been slightly side tracked. ;) Grace has been an angel. Her meds are definitely overwhelming, however, I think I'm getting the hang of it. I organized everything as best as I could...Here are all of Grace's medications.

This is her Medication Schedule...Its in a nice check-list format so we can check them when they're done. I just love checklists!!!Here is how I've organized them for an entire day. She takes meds at 8-12-4-6-8 and midnight. 8a.m. is the worst because she has nine of them...and that's a lot. But, I got some awesome advice from Kaidence's mom, Shauntelle, and so I've labeled all my syringes and I pre-draw everything the day or night before, so its ready to go. So far, I have not been too overwhelmed with everything, and I haven't forgotten any of her doses. However, they want me to try and eventually memorize all the names, doses and times of her medications....one of her meds is called Sulfamethoxazole Trimethoprin...I can barely pronounce it, much less memorize it! But oh well. Maybe I'll surprise myself with all the repetition. :)

Aside from her medications, she is eating 80ml every three hours...or at least she's supposed to be...but she never has the desire to eat more than about 15..then she just smiles, and drools and gnaws on the bottle.

Don't you just love this face?!!! Its a "I'm not so sure about this lady here...she looks kinda crazy..." look! It's such a cute face!! And she's probably not too far off on thinking her mama is crazy!

Hospital genre aside, she is doing great. She truly is like a new little baby. She's still our little Grace, but we've taken her home, having a door opened to us. She is rarely fussy and grumpy, but rather, she is nearly always happy, smiling, cooing and giggling, (primarily at Dacia!), it is such a wonderful change from the old so called "Princess Scowls-alot". She really is an angel and I have LOVED every minute of having her home. We've read to her, played with her, watched movies together, sat on the patio, cooked together, snuggled, napped and anything else, and I think it's safe to say she's loved every minute maybe as much as we have. :)

So I came into my bedroom and Topher had fallen asleep reading Grace stories. Classic don't you think?? He reads HER stories to put HER to sleep, and instead he passes out. She must have gotten a kick out of it too...Then I came in 5 minutes later, and I found this...what a bunch a cuties.Thank you for all your continuous love, prayers and support. We know they have made all the difference. We can't imagine where we would be without Heavenly Father's hand so apparent in our lives. We acknowledge him in all our blessings and are so grateful he has been there for us to lean on, and sometimes to carry us, every step of the way. Thank you again for your prayers!We'll try to keep everyone as up to date as possible...I would post more pictures, but the one time I got my camera out, she got fussy! punk. ;)

Love you all!

Alysia, Topher and Grace