The word is that we're going home today...but who knows until they're actually sending us out the door right?
They've been talking about today being the day for the last 5 days now...so I really hope it sticks this time.
She has to have an Echocardiogram and an EKG before they'll give us the ok or not. So hopefully both of those come back positively.
I am so nervous to think of having her home 24/7, but at the same time I am so ready for her full time as well! I know...very contradicting...but that's how I feel.
I just need to go to the hospital and place the NG tube, :( which I am not so excited for, but if I can do it, then on our end, she'll be clear to come home with us!
We'll also be finding out for sure if we can be taking her out places or if we need to be more confined to the house and such. We of course want lots of people to meet her and enjoy her as much as we do...but her health is so fragile, we can't risk getting her sick and ending up in the hospital again.
We feel so blessed that all has gone so well thus far. She has been able to meet every goal they've set for her, and remain relatively happy and content. She hasn't had any major problems or setbacks, at least not in comparison to other little babies, and she has been able to stay remarkably stable. We're so grateful for her determined spirit and feisty temperament. We know that they've helped her and us get through all this up to this point. We also know that so many of these blessing we've received have been thanks to the many prayers everyone is offering in our behalf. Thank you!
Thank you all for your continuing love, support and prayers in our behalf. Grace truly is a miracle to us and we're so grateful for every day she continues to bless us with her life. We hope everyone will get to enjoy and love her as much as we do, but don't be offended if we keep to ourselves for a little while, just to make sure all is well!
All our love
Alysia, Topher, & Grace


Our Family . . . said...

What an amazing thing! Grace is strong enough to go home :) That's wonderful news, Toph and Alysia.

We'll be thinking of you all today and hoping you'll feel 100% confident in everything you'll be learning. I'm sure it's totally overwhelming, but you'll do great!!

Love you guys!

Our Family . . . said...

One more thing .... that picture of Grace is gorgeous!!! Love it!!

:) Amy

Anonymous said...


She is so beautiful! I can hardly wait to see her again next week.
I will find out in two days how my heart is doing. Hey, Gracie we are fighting this battle together! I am so happy you have your grandmas feisty personality. I comes in handy sometimes, other times I just get into a lot of trouble!

Grandma Atkinson

Sara & Company said...

That is such wonderful news!!! I am so happy she is making so much progress and that she will get to be with you! Good luck today. We love you!!!

Tanner, Avery, and Benson Milne said...

Yeah! I'm so excited for you to be taking her home!! It is the best feeling in the world after spending so much time in the hospital.
She is sooo cute... She looks so chubby and healthy. We hope and pray all continues to go so well..

Allie said...

Wow that is great news I just got back from vac and that is great i will wait to see what that say later today. I hated not being able to check the blog or use my cell phone for 8 days I felt so lost.love ya auint allie

Super Daysh said...

Yay!!! Gracey is home! That is so exciting. You will have to let me know how it is to have her home so far!! I'm so excited for you guys and so nervous and terrified for you at the same time! Good luck!

Mythreesons said...

Congrats on having her home, Bugs! Have fun not sleeping at all tonight... i say send Mom in there and make her earn her keep! We'll be praying extra hard for you guys now. jaxon always prays that a "heart will become available" for Grace... even at dinner and lunch. Good luck with everything and enjoy having your baby 24/7. It's nice to finally feel like the mom... Love you guys!

The Brown Family said...

Hi! I am the lady who told you that my neighbor was stalking your blog when I met you in the PICU. It turns out that she is stalking both your site and Gracie's. Anyway, that's how I found you and I am so excited to read that you are all home. Our son, Kai (tetralogy of fallot) has done so well and it was great to actually get to come home and unpack our bags from China!
Thank you for sharing so much on your blog. I have cried reading your posts, as my own emotions are right on the surface about all of this. I think you are both great and I am so glad that I had the chance to meet you for a minute in the PICU.
Kim Brown