7.09.2009

As a quick update.  We made it home.  We have a few more doctors visits in the next few days, to continue to check on grace, and most importantly to make sure that her medicine levels are all under control.  But, we are no longer residents of the hospital, for now.  

I guess that the terrible spiral that we got into that led us to the hospital is that grace will start to feel sick and won't eat as much and get dehydrated, and this means that her medicine will be more potent which makes her kidney function drop way down, and her imune system to turn off even more, and makes her sicker, and less willing to eat, and so pretty soon she can be in a pretty bad shape.  She is all re-hydrated, and nourished now, and on a reduced dose of imune-suppresents.  Hopefully now she will get much better, and we will soon have our happy little grace back

As a quick story:  Just before going home today, grace was in a better mood and finally wanted to get down and explore her room.  She was still hooked to an i.v. however, so we would wheel the i.v. stand out into the middle of the room and let her walk around a little.  She soon descovered that the i.v. stand was on wheels, and a great thing to push around as she went, so we had our little tiny grace, in her hospital shirt, with i.v.s and tape and bandages all over,  holding on to this giant I.V. stand, walking around, it was quite a pitiful/cute/funny little thing to see.  At one point she even grabbed her little bag of treats and thew it on to the i.v. stand to wheel around with her, she was pretty cute.

It is good to be home.  Thank you for your love and support everyone!

15 comments:

Bev said...

Thanks for the update. Glad she's feeling better

princess jen said...

YAY! I'm so glad she's home again where she belongs. I love you.

Lady of the Rings said...

Glad you are all back home now. You are right, we all were a bit lax in our sanitazing and need to repent, or little Grace has to pay for it. Promise I will do better and be more concientious about sanitizing. Love you lots. Can't wait to see you all.

Alan J said...

Glad you guys are home and she's doing better. Hopefully we get to see you this weekend.

Christina said...

I am glad you are home and things are looking better. It is hard on these little kiddos when they get sick. Jacob had the 104 degree fever for 5 days but it didn't turn into anything else. Hoping for a healthier month for you guys!

Hugs & Prayers,
Christina
Jacob's Momma

Lauren K said...

Oh honey I'm so sorry, I had no idea!
Good luck with Gracey, and with getting some sleep sometime in the near future. I love you tons and I hope to see you soon.

The Stewart's said...

I'm glad Grace is feeling better. I think there is only one thing worse than those darn fevers, having to be in the hospital. But I have to agree with you about the nostalgia. There is somehting comforting about being there, and I miss the food too. Does that mean we've spent too much time there?

Ryan and Hilary said...

I had no idea that you were in the hospital. I keep checking the blog to check how everything is going. Well I am glad that you are home and that she is getting back to herself. Holy cow she is growing up. I didn't even recognize her. Hope everything gets better.

Super Daysh said...

We sure love our little Gracey lou. I'm glad she is feeling better and that you guys are home. Hopefully she will start eating better and be her healthy, happy self. Then we can go play with her again!

Grandma Ann said...

Hi Guys,
Been a while since I have checked blogs. Sorry that Grace was in the hospital....Happy that she is home. She is such a cutey. Alex just passed his first "New Heart" birthday. What a wonderful day.
Gracey's will be coming soon. Hip Hip Hooray.
Loves,
Grandma Ann

aj said...

Man, I checked the blog for news when you guys were first in the hospital, and didn't see anything, and here, I missed TWO posts since then!! Eeek!!

I'm so glad Gracey is doing better now!! Crazy, scary, sad. Those pictures of her without her usual cheesy grin made me want to cry, even though she is, of course, still very cute.

Joe said...

What happened to your "Sometimes I snort" post? Your blog needs more funny posts like that one :)

Thoughtful Runner said...

We are just very happy she is feeling and doing better - and we're anxious to have her over again!

Mimi said...

Oh wow!! I am soo glad you guys are back home. We had a very similar experience last month- crazy fevers, a ton of labs, and it turned out to be a virus.

I am so happy you got to take a vacation!! You deserve it!!

Liz said...

glad that things are going well!! miss you. we need to catch up soon.